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To Join our B.E.S.T. Monthly Zoom Chat: Text @supporteam to 81010
(This is for those with exstrophy and/or related conditions)
CLICK HERE for more information
The Association for the Bladder Exstrophy Community (A-BE-C) is an international support network for patients and families living with bladder exstrophy.
A-BE-C is working to make the highest standard of treatment available to all who are affected by bladder exstrophy. Whether you are a parent of a child or an adult with this condition, or a member of the medical community, A-BE-C is here for you.
Click Here to visit their website.
NEW Adult Provider Directory: Click Here
Live on the East Coast and can't make it out west for the B.E.S.T. Campout?
Consider attending the....
2026 Great Lakes Chapter 16th Annual Summer Campout
They will have a picnic lunch at the campground's Island Pavilion on Sat. July 25.
CLICK HERE for to view some videos about what their campouts are like.
Dates: July 24 - July 26, 2026
Location and Facilities
Eby’s Pines RV Park & Campground in Bristol, Indiana, is located in the scenic forests of northern Indiana’s Amish Country. It is just minutes from the Indiana Toll Road. Eby’s Pines has tent sites, full hook-up sites, pull-thru sites, and cabins, as well as two heated pools and a playground.
Eby’s Pines Campground
14583 State Road 120
Bristol, IN 46507
There is a private Facebook group called “GLC 2026”, for this campout!
Whether you are camping at Eby’s Pines, staying at a nearby hotel, or visiting just for the picnic on Saturday, July 26, please contact Alice Ambrose to let her know the number of people coming with you. You may text her at (616) 406-7857 or e-mail bradnalice@charter.net.
Check out the NEW bladder exstrophy APP!
Check out the NEW bladder exstrophy APP!
‘We the BE’ is an on-the-go resource for Bladder Exstrophy with quick access to a wide variety of topics, video learning and contact with specialists who can answer your questions. Click Here for further details and to download tha app.
The Youth Rally is an annual camp experience for youth (ages 11 - 18), living with conditions of the bowel and/or bladder system. Their mission is to provide an environment for youth and adolescents that encourages self-confidence and independent living: https://youthrally.org/
Also, check out their “FAQ” page for a link to the Facebook group page for the Youth Rally as well as links to numerous other websites for great information: https://youthrally.org/faq
The 2026 Youth Rally will take place at the University of Colorado in Boulder, CO from July 6th-11th.
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