RESOURCES
The Association for the Bladder Exstrophy Community (A-BE-C) is an international support network for patients and families living with bladder exstrophy. Click Here to visit their website.
Live on the East Coast and can't make it out west for the B.E.S.T. Campout?
Consider attending the....
2025 Great Lakes Chapter 15th Annual Summer Campout
They will have a picnic lunch at the campground's Island Pavilion on Sat. July 26.
CLICK HERE for to view some videos about what our campouts are like.
Dates: July 25 - July 27, 2025
Location and Facilities
Eby’s Pines RV Park & Campground in Bristol, Indiana, is located in the scenic forests of northern Indiana’s Amish Country. It is just minutes from the Indiana Toll Road. Eby’s Pines has tent sites, full hook-up sites, pull-thru sites, and cabins, as well as two heated pools and a playground. Driving directions to Eby’s Pines may be found toward the bottom of this email.
Eby’s Pines Campground
14583 State Road 120
Bristol, IN 46507
Whether you are camping at Eby’s Pines, staying at a nearby hotel, or visiting just for the picnic on Saturday, July 26, please contact Alice Ambrose to let her know the number of people coming with you. You may text her at (616) 406-7857 or e-mail bradnalice@charter.net.
Check out the NEW bladder exstrophy APP!
‘We the BE’ is an on-the-go resource for Bladder Exstrophy with quick access to a wide variety of topics, video learning and contact with specialists who can answer your questions. Click Here for further details and to download tha app.
To Join our B.E.S.T. Monthly Zoom Chat: Text @supporteam to 81010
(This is for those with exstrophy and/or related conditions)
CLICK HERE for more information