The Association for the Bladder Exstrophy Community (A-BE-C) is an international support network for patients and families living with bladder exstrophy. Click Here to visit their website. 

Live on the East Coast and can't make it out west for the B.E.S.T. Campout

Consider attending the.... 

2024 Great Lakes Chapter 14th Annual Summer Campout

They will have a picnic lunch at the campground's Island Pavilion on Sat. July 27.  More details to come soon.

Dates: July 26 - July 28, 2024

Location and Facilities

Eby’s Pines RV Park & Campground in Bristol, Indiana, is located in the scenic forests of northern Indiana’s Amish Country. It is just minutes from the Indiana Toll Road. Eby’s Pines has tent sites, full hook-up sites, pull-thru sites, and cabins, as well as two heated pools and a playground.  Driving directions to Eby’s Pines may be found toward the bottom of this email.

Eby’s Pines Campground

14583 State Road 120

Bristol, IN  46507

Check out the NEW bladder exstrophy APP!  

‘We the BE’ is an on-the-go resource for Bladder Exstrophy with quick access to a wide variety of topics, video learning and contact with specialists who can answer your questions.  Click Here for further details and to download tha app. 

To Join our B.E.S.T. Monthly Zoom Chat: Text @supporteam  to 81010 (This is for those with exstrophy and/or related conditions)