ABOUT US

The Bladder Exstrophy Support Team (BEST) is an organization of families, individuals, and medical professionals whose lives are touched by bladder exstrophy and related conditions. BEST is dedicated to helping you stay in touch with events, personal connections, and assistance close to home.

In order to connect people affected by bladder exstrophy, we hold two events each year focused on our community. Each spring, BEST hosts a meeting focused on informing its members by inviting medical professionals to speak on the various aspects of living with bladder exstrophy. In the fall, BEST hosts a campout at Lake Tahoe that focuses on building the bladder exstrophy community.

BEST is supported by advice and input from Stanford Pediatric Urology at Lucile Packard Children's Hospital for our members and through donations and grants given to us by individuals and companies to which help make us a rich source for bladder exstrophy information and contacts. We also work closely with A-BE-C, Seattle Children's Hospital to help treat and inform those affected by bladder exstrophy.

Please feel free to explore what we have to offer – we are families, adults, and medical professionals: all part of an ongoing and growing effort to provide ready access to information and resources. BEST is here to help you increase your understanding of exstrophy, and to discover how to meet your needs.