Monthly Support

We hold Monthly face to face Zoom Chats for those with Exstrophy and/or related conditions. These calls provide a safe and supportive space for people worldwide to connect, share experiences, ask questions, and have fun. It is a unique opportunity for many to meet others with similar conditions for the first time. We have a very welcoming community who love to get to know others with similar diagnoses and offer support in any way we can. Our monthly Zoom chats started in 2020 and have continued due to the positive feedback we have received from participants.  

To get information about when our monthly support chat is held, and how to receive the zoom link, please message us on our instagram @b.e.supportteam