Monthly Support

We hold Monthly face to face Zoom Chats for those with Exstrophy and/or related conditions. This chat is a place where all patients can get to know one another. We share experiences, advice, form relationships, and have fun. The more the merrier! We have a very welcoming community who love to get to know others with similar diagnoses and offer support in any way we can. To get information about when our monthly support chat is held and how to receive the zoom link, message us on our instagram @b.e.supportteam